Becoming Peer. Learning from Nightlife

To mark the launch of our latest publication, ‘Becoming Peer. Learning from Nightlife’, C-EHRN recently hosted an online dialogue meeting with the authors (Tait Mandler and Roberto Perez Gayo) and other experts in the field of nightlife harm reduction and peer work (Hayley Murray, researcher at Wageningen University and Lynn Jefferys, operations manager at EuroNPUD). The participants of the dialogue, who have diverse backgrounds and living experiences, including those from nightlife, research, substance use, care provision, policy and advocacy or community self-organising of people who use drugs, delved into the ways through which innovative forms of meaningful involvement, health, and evidence can emerge in their respective fields of work.

Becoming Peer was born with the intention of offering a toolbox for reimagining harm reduction, drawing from concepts, experiences and practices from nightlife and other so-called “recreational settings”. The publication invites stakeholders to acknowledge the value of each other’s expertise in developing effective harm reduction practices. Through discussions of common but contested concepts, the authors invite the reader to question and unsettle power imbalances between different actors, practices, and forms of knowledge, making space for more effective community-based responses to arise.

 

Who is considered a “peer”?

Peer workers are generally understood to be people with first-hand experience of a specific activity or setting, and the word ‘peer’ points to similarities and shared status. However, being a “peer” worker does not necessarily mean being in a position equivalent to that of people in similar roles or those on the receiving end of interventions. Peer workers have different positionalities, and asymmetries stand between people with lived and living experiences. To cultivate meaningful peerness, it’s central to recognise and use the generative potential of differences to create new strategies for mutual respect and equality among all stakeholders – including peer workers, researchers and policymakers.

 

Who decides what “healthy” looks like?

Widespread models of health see health as the responsibility of the doctor or the medical establishment, while the patient engages passively, as a “consumer” or as the target of health promotion campaigns. However, from the early history of harm reduction, we learn that health can be understood as a dynamic community practice:

What if health is an activity, not so much a definition of the state of the body? […] However we define it, health emerges in practices of care. And so again, in nightlife harm reduction, there’s a lot of emphasis on ways in which people care for each other. (Tait Mandler, researcher at Wageningen University)

Health can be redefined as a whole concept from the position of people who use drugs, who have long been cast in the position of the “unhealthy”. Being healthy means different things to different people, and it is limiting to define it only within the healthy/unhealthy binary.

Health to someone can mean that they feel at their best. And if feeling at their best means dancing under the influence of drugs in the sand and surrounded by a community who cares about them, then that should also be part of health. (Hayley Murray, researcher at Wageningen University)

Participants of the meeting discussed the importance of trust in successful peer support, which can originate from having a shared experience with a certain substance, a similar background or presentation, and from simply knowing that the other party will not be judgmental, shocked or stigmatising and prepared to tend to one’s needs.

Building trust is really centered on using non-stigmatizing, strengths-based language and creating places for people to have safe conversations around drugs, in an anti-oppression, non-carceral framework. People need to know that you’re a person who isn’t going to be shocked when they say something about GHB or heroin, for example. (Lynn Jefferys, operations manager at EuroNPUD)

 

What counts as evidence?

Harm reduction projects that promote their own version of health from the community often have to produce evidence to show the impact of their work, whether for funding or to affect policy. There is a hierarchy that frames certain types of evidence, such as randomised control trials and statistical analysis, as the most convincing. On the other hand, lived experiences and personal stories are often discredited or taken less into account. 

Yet, the tacit, embodied knowledge and the everyday experience of people who use drugs constitute a precious “living archive” of information. Becoming Peer advocates for the recognition and respect for the expertise of people who use drugs in the harm reduction field and their involvement in developing innovative, community-based strategies and interventions.

As long as evidence is equated with expert knowledge or only seen as useful when produced through particular scientific methods there can be no meaningful peerness […]. An archive, on the other hand, doesn’t prefigure how it is used, doesn’t dictate what’s useful and what’s not. Archives don’t foreclose the future—they allow it to be open ended. (Mandler, T. & Perez Gayo, R. (2023) Becoming Peer: 25)

Access the toolkit supporting service providers in drug demand and harm reduction quality standard implementation

Drug demand and harm reduction quality standards support achieving high-quality programmes and services, ensuring that interventions are delivered well. However, their implementation can be a headache for service providers. The good news is that the helpful quality standard implementation toolkit developed under the FENIQS-EU project is now available online, giving guidance through every step of the implementation process!

Besides the first section clarifying the basic concepts of quality standards, the toolkit includes a chapter on the key factors for a successful implementation. This is followed by a section dedicated to guiding service providers through each step of the way, also discussing the possible barriers and challenges they might face when putting quality standards into practice. The final two sections provide some inspiring examples, including good practices and accounts of service providers from all over Europe.
 
The toolkit can be found on the FENIQS-EU project’s website both in an easy-to-navigate online and in a downloadable pdf format, accompanied by video tutorials for each chapter.
 

HCV Testing Starter Kit – HCV Testing in the Community by the Community

Community-based testing refers to an approach by which targeted testing services are implemented in community settings so that they can be accessed, and used, by affected and marginalised people who may be unable, or reluctant, to access such services at public health facilities, such as at major hospitals. Community settings can include one or more of the following: fixed venues; mobile testing

units; outreach sites; through home visits; and also through community-based organisations such as buildings used for religious practices, such as churches and mosques; parks; homeless shelters; needle and syringe programmes; educational environments; and workplaces, amongst others.

This HCV Community Testing Starter Kit is designed to assist services for, and by people who use drugs and their peers to implement quality HCV testing services. It was developed with support of experts from cummunity based organisations of people who
use drugs:

Brugernes Akademi, Copenhagen
Caso (Consumers Associated Survive Organized) Porto
Stockholm Drug User Union
ProLAR Nett, Oslo

The harmreduction organisations

Fixpunkt e.V., Berlin
Free Clinic, Antwerp
EuroNPUD (European Network of People Who Use Drugs)

provided critical feedback.

Key Principles of Harm Reduction in Homeless Settings

Check out the HR Key Principles, our key innovative output which translates the learnings of the HR4homelessness project into guidance for homeless and other services who support people in homelessness

The HR Key Principles translate the learnings from the ‘HR4homelessness’ Project, which brought together homeless and bustance use services, into guidance for homeless services to improve support provision for people who use drugs and/or alcohol.

For each of the seven principles, strategies for improving support provision are described as well as existing good practices. We provide suggestions for tools that can be helpful for staff and service users, suggestions for further reading and link you up to the respective training video(s). The seven principles are:

  1. Human Rights based service provision: HR aims at establishing quality of individual and community life and well-being – not necessarily abstinence of all drug use – as the criteria for successful actions and policies. HR calls for a non-judgmental, non-coercive access to support and care.
  2. Meaningful engagement of service users: HR engages and involves people with lived experience of homelessness and substance use in the development and evaluation of policies, services and programs that affect them. This is essential for achieving  good social and health outcomes and addressing unmet needs.
  3. Reduce risks and harm: HR focuses on reducing the harms related to substance use for the individual and the broader community. It takes into account factors that may exacerbate vulnerability such as trauma, incarceration history, racism, social disadvantage, housing status, age, sexual orientation and gender.
  4. Take on a pragmatic attitude: HR accepts that licit and illicit substance use is part of our world. HR reflects the idea that none of us will ever achieve perfect health behaviors and that ‘perfect’ health behaviors are impossible to define as they are shaped by social determinants and norms.
  5. Person Centered Services: HR services focus on responding to the needs, preferences and values of the individuals and communities they work with. This includes the recognition of the social conditioning of health outcomes, addressing power relationships between care providers and service users, and the promotion of communication and shared decision-making.
  6. Evidence-based services, strategies and policies which are relevant and effective to the communities they serve and which are regularly evaluated and, if necessary, adapted.
  7. Accountability: HR aims to minimize not only the negative health and social impacts associated with drug and alcohol use, but also the harms caused by respective policies, laws, services, and institutional practices. HR promotes processes and systems designed to hold individuals and groups in check for their decisions and actions.

COVID-19 Resource Centre

To support people who use drugs and other marginalized and underserved communities, as well as health and social workers delivering services under challenging conditions to bring this outbreak to a close, Correlation – European Harm Reduction Network is developing this Coronavirus Resource Centre. This capacity-building initiative complements our advocacy activities and the Joint Position on the Continuity of Harm Reduction Services During the COVID-19 Crisis that we published together with the Eurasian Harm Reduction Network, and the Rights Reporter Foundation

This Resource Centre brings together contributions, materials, experiences of our members, partners and allies. New/Updated materials come first, as situations change very quickly.

If you discover any out-of-date links or if there would be any links that could be included, please, let us know at this address: rpgayo@correlation-net.org

 

STATEMENTS | POSITION PAPERS | ADVOCACY

Coalition Plus, IDPC, HRI, INPUD, C-EHRN, INHSU, TAG | COVID-19: An Opportunity For POlicy Reform [June, 26th]

RCC-THV | Call to Action in Response to COVID-19 [May, 14th]

UNAIDS | Sex Workers Must not be Left Behind in the Response to COVID-19 [April, 8th]

TGEU | COVID-19 & Trans People [April, 6th]

INPUD, HRI, EHRA, IDPC et al | Call to Action COVID-19 – Special Rapporteur on the Right to Health [March, 31st]

Nobody Left Outside | EU and national government COVID-19 responses must reach everyone – including marginalised people [March, 26th]

UN Human Rights Experts | No Exceptions with COVID-19: Everyone Has the Right to Live-Saving Interventions | [March, 26th]

EATG | EATG statement on the evolving COVID-19 pandemic [March, 25th]

PICUM | The COVID-19 pandemic: We Need Urgent Measures to Protect People and Mend the Cracks in our Health, Social Protection and Migration Systems [March, 25th]

EUPHA | Statement by the EUPHA Migrant and ethnic minority health section on COVID-19 – CALL FOR ACTION [March, 24th]

UNAIDS | Rights in the time of COVID-19. Lessons from HIV for an effective, community-led response | Infographic | [March, 20th]

C-EHRN & EHRA | Harm Reduction Must Go On [March, 19th]

Human Rights Watch | Human Rights Dimensions of COVID-19 Response [March, 19th]

Global Rights / Susanna Ronconni | Prisoners Rights Matter! Statement | Article [March, 19th]

FEANTSA | COVID-19: “Staying Home” Not an Option for People Experiencing Homelessness [March, 18th]

ICRSE | COVID-19: Sex Workers Need Immediate Financial Support and Protection [March, 18th]

Penal Reform International | Coronavirus: Healthcare and Human Rights of People in Prison [March, 16th]

DPNSEE | Public Appeal to Protect Vulnerable Groups from COVID-19 [March, 2nd]

 

GUIDELINES | PROTOCOLS | GOOD PRACTICE

 

DRUG USE

EHRA | Harm reduction service delivery to people who use drugs during a public health emergency: Examples from the COVID-19 pandemic in selected countries [November 2020]

Manitoba Harm Reduction Network | Outreach Guidelines During COVID-19 [Updated, March, 26th]

EuroNPUD & INPUD & Respect Drug Users Rights | COVID-19: Advice for People who Use Drugs [March, 26th]

Forum Substitution Praxis | Newsletters on COVID-19 and Substitution Treatment [GER] [Update Daily]

Drug Reporter | How Harm Reducers Cope with the COVID-19 Pandemic in Europe? [Last update: March, 20th]

MAINline | 8 Corona-Tips voor Mensen die Drugs Gebruiken [NL] [March, 20th]

AFEW International | Mental Health & Psychological Considerations during COVID-19 Outbreak [March, 20th]

Scottish Drug Forum | Guidance on Contingency Planning for People who Use Drugs and COVID-19 (v1.0) [March, 19th]

Echele Cabeza | Consumo de Sustancias Psycoactivas en Cuarentena [SP] [March, 19th]

Zurich Drug Consumption Rooms | COVID-19 Protocols [March, 19th]

Metzineres | COVID-19 Harm Reaction Poster | Flyer (front) | Flyer (back) [March, 19th]

Energy Control | Party & Drugs in the Time of Coronavirus [March, 19th]

YALE | COVID-19 Guidance: Clinicians & Opioid Treatment Programs [March, 18th]

YALE | COVID-19 Guidance: Patients Engaged in Substance Use Treatment [March, 18th]

YALE | Guidance for People Who Use Substances on COVID-19 [March, 18th]

Arild Knutsen | An Open Letter on COVID-19 and PWUD [March, 17th]

DPNSEE | Instructions on Coronavirus for PWUD [Serb] [March, 16th]

Quality Assurance Commission for Substitution Treatment in Germany | Information on Opioid Substitution and COVID-19 – Advice for Physicians [March, 16th]

LANPUD | Drogas y COVID-19 [SP] [March, 14th]

INPUD | Harm Reduction for People Who Use Drugs [March, 13th]

Drug Policy Network SEE | Basic Protective Measures Against the New Coronavirus [March, 11th]

HRC | Safer Drug Use During the COVID-19 Outbreak [March, 11th]

HRC | Syringe Services and Harm Reduction Provider Operations During the COVID-19 Outbreak [March, 11th]

CREW | Coronavirus – General Hygiene Harm Reduction Tips [March, 4th]

 

SEX WORK

ICRSE | Sex Workers Response to COVID-19 in Europe and Central Asia [continuosly updated]
NYC Health | Information on Safer Sex during COVID-19 [March, 21st]
Butterfly Asian and Migrant Sex Workers Support Network & Maggie’s Toronto Sex Workers Action Project |Sex work COVID-19: Guidelines for Sex Workers, Clients, Third Parties, and Allies [March, 19th]

 

GENDER & SEXUAL ORIENTATION

Metzineres | Woman & Gender Non-Conforming People Who Use Drugs Surviving Violence During Quarantine [April, 8th]
NYC Health | Information on Safer Sex during COVID-19 [March, 21st]
GMSH | COVID-19: 2GBTQ MEN [March, 20th]
David Stuart | What does coronavirus (COVID-19) mean in regard to Chemsex? [March, 19th]
Energy Control | Party & Drugs in the Time of Coronavirus [March, 19th]

 

CAPACITY BUILDING

STUDIES | REPORTS | ARTICLES

WEBINARS

FEANTSA | COVID19 & Rough Sleepers [June, 10th]

ISAM | 3rd Webinar on COVID19 and Substance Use [May, 7th]

Alliance for Public Health | COVID-19 Lessons: What can make HIV programs in EECA countries more sustainable? [May, 5th]

ISAM | 2nd Webinar on COVID19 and Substance Use [April, 15th]

INPUD, Medicines du Mond, HRI, UNDOC, WHO | COVID-19 Harm Reduction Programme Implementation [April, 6th]

International AIDS Society | COVID-19 & HIV: What you Need to Know [April, 3rd]

EU Health Policy Platform | COVID-19 European Coordinated Response to the Pandemic [April, 3rd]

CATIE |  Coping with COVID-19: Insight from the Front Lines of HIV, Hepatitis C & Harm Reduction [March, 26th]

Institute for Interdisciplinary Innovation in Healthcare | COVID-19: a Systemic Crisis [March, 25th]

ICPA | Response to COVID-19 in Prisons | Slides | [March, 19th]

ISAM | COVID-19 and Substance Dependence [March, 19th]

Foundation for Opioid Response Efforts | Medications for Opioid Use Disorder and the COVID-19 [March, 19th]

HRC | Harm Reduction, COVID-19, and People Who Use Drugs [March, 18th]

 

PODCASTS

Crack Down |Emergency Measures [March, 20th]

Ten Percent Happier with Dan Harris |How to Handle Coronavirus Anxiety | Special Edition [March, 14th]

Healing Justice | Coronavirus: Wisdom from a Social Justice Lens [March, 13th]

Statement: Harm Reduction Must Go On!

Correlation – European Harm Reduction Network and the Eurasian Harm Reduction Association, together with the Rights Reporter Foundation, published a joint position on the continuity of harm reduction services during the COVID-19 crisis.

Download the English, Russian, German, Portuguese, Spanish, Polish, Hungarian, Czech, Montenegrin PDF version here!

People Who Use Drugs (PWUDs) can be considered as a risk group in the COVID-19 epidemic. They often live at the margins of society with low or no access to housing, employment, financial resources, social and health care, and face systematic discrimination and criminalisation in the majority of countries. Many of them have multiple health problems, which can increase the risk of a (fatal) COVID-19 infection (including long-term diseases such as COPD, HIV, TB, cancer, and other conditions which reduce the immune system). Harm reduction services are often the one and only contact point for PWUDs to access the health service. They provide health and social services as well as other basic support, and function as an essential link to other life-saving services. We call on local and national governments and international organisations introducing safety measures and to:

1. Ensure the continuity and sustainability of harm reduction and other low-threshold services for PWUDs during the COVID-19 epidemic. This includes, in particular, Opiate Substitution Treatment (OST), Heroin Assisted Treatment (HAT), Needle and Syringe Programs (NSP), naloxone provision, and continued access to Drug Consumption Rooms (DCRs). In addition, essential basic services need to be provided, including day and night shelter, showers, clothing, food, and other services. This is of particular importance to those who experience homelessness and/or live on the streets.

2. Provide adequate funding for harm reduction and other low-threshold service providers, and supply them with adequate equipment to protect staff and clients from infections (soap, hand sanitiser, disposable face-masks, tissues etc.).

3. Acknowledge the important and critical role of harm reduction and other low-threshold services in the COVID-19 pandemic and address the specific vulnerable situation of PWUDs and other related groups.

4. Develop specific guidelines and regulations for harm reduction services, with respect to the vulnerable situation of PWUDs and related target groups. These guidelines should be developed in close cooperation with involved staff and the affected communities, and build on international WHO guidelines, recommendations, and evidence and/or national COVID-19 regulations.

More specifically we call for the following:

5. OST and HAT should be maintained and take-home regulations should be established or extended for patients to have the opportunity to come for treatment rarely then ones a week. Access through pharmacies should be ensured.

6. NSP should provide PWUDs with larger amounts of needles, syringes, and other paraphernalia to minimise the number of contacts. Special bins for needles and syringes should be provided to collect used material at home.

7. Harm reduction services should provide COVID-19 prevention material and information for staff, volunteers, and service users, including soap, alcohol-based hand sanitisers that contain at least 60% alcohol, tissues, trash baskets, and disposable face-masks (if this is requested by national regulations), for people who show symptoms like fever, coughing, and sneezing.

8. Drop-in services, day shelters, and DCRs should advise and support PWUDs in preventing COVID-19 infections. Visitors should be made to sanitise their hands when entering and should stay no longer than is absolutely necessary. Kitchens can prepare take-away food to be eaten outdoors. All necessary measures should be made to increase social distancing among visitors/staff with all possible means, and rooms should be ventilated. Overcrowding in harm reductions services, shelters, and DCRs should be avoided, by establishing safety measures, e.g. minimising the duration of stay, maximum number of visitors, entering only once per day. People with permanent housing should be encouraged to stay at home and come only to pick up needles and other harm reduction paraphernalia and tools.

9. The health situation of PWUDs should be monitored closely. If someone shows symptoms, such as fever and coughing, face-masks should be provided and a medical check-up should be ensured. Cooperation agreements with public health services, related health units, and hospitals need to be established to ensure direct medical support, follow up care, and treatment.

10. Night shelters need to be made available for people experiencing homelessness, with a separation in place between those who are not infected and those who are infected and need to be quarantined but do not need specific medical care and treatment in hospitals. Night shelters have to comply with the overall safety regulations for COVID-19, and people should not be exposed to additional risks for infection through overcrowding and insufficient health care.

11. Group-related services, such as meetings and consultations, should be cancelled and postponed until further notice or organised as online services. New treatment admissions should be temporarily suspended. Coercive measures (e.g treatment referrals made by court/prosecutor/police, probation officer visits etc.) should be suspended. Mandatory urine sampling should be abolished.

12. Harm reduction services should establish a safe working environment and make sure that staff are well informed and protected against infection. Service providers should identify critical job functions and positions, and plan for alternative coverage by involving other staff members in service delivery.