5-5-5 Zone – We won’t be left behind! at AIDS 2024 conference: Call for Proposals

The European AIDS Treatment Group (EATG) together with AIDS Action Europe (AAE) and Correlation – European Harm Reduction Network (C-EHRN) are issuing this Call for Participation in “5-5-5 – We won’t be left behind!”, a networking zone in the Global Village at the 25th International AIDS Conference (22 July – 26 July 2024) in Munich, Germany.

Please carefully read the application details before submitting your application. Click here to submit your application: https://forms.office.com/e/bL7xzEMVvq

Application deadline 23 May 2024, 23:59 CET. 

Unfortunately, we are not able to provide financial support for presenters or participants. Organisers must find their own funding for travel to Munich, Germany and all costs associated with participation in AIDS 2024. For more information about the conference visit: www.aids2024.org.

Entry to the Global Village is free and open to the public. It does not require the payment of a conference registration fee.

If you have any questions, please contact Chiara Longhi (chiara.longhi@eatg.org).

 

Objectives

The 5-5-5 – We won’t be left behind! zone will examine gaps and solutions to achieve the 95% targets, and how to reach the remaining 5% with a focus on the WHO European region (partners beyond the region are welcome to apply). There will be one theme per day with inspirational talks, presentations, and recaps on key learnings.

The objectives are:

  1. To foster and strengthen cross-sectional and cross-country collaborations by providing a space for mutual-learning and networking together means for them.
  2. To strengthen the inclusivity and participatory nature of HIV related organisations by consulting communities on what meaningful engagement.
  3. To strengthen and sharpen advocacy initiatives, by providing a space to discuss communities’ advocacy priorities, challenges, and ways to work.

The zone will provide space for community organisations to organise sessions around 5 themes. The overarching themes will be to address stigma and discrimination, improve health outcomes of inadequately served populations and social justice.

Thematic days:

  1. Mobility and HIV (21 July).
  2. Sexuality and sex positive approaches (22 July).
  3. Well-being, quality of life and mental health (23 July).
  4. Substance use and harm reduction (24 July).
  5. Blind spots in the HIV response (25 July).

Who can apply?

We are calling for participation from grassroots and national NGOs, community-based organisatios, networks, researchers, institutions, civil society organisations, human rights organisations, advocacy associations for people living with HIV and other social justice organisations, as well as leaders in the field of HIV from around the WHO European region to join us in advancing the above objectives. Partners beyond the region are welcome to apply.

In our networking zone, we are particularly looking for applications from people living with HIV and other co-infections, trans and gender-diverse people, migrants and people on who move, women, people who use drugs and people in prisons and closed settings.

Activities

We invite you to apply to host an activity related to one the thematic days (Mobility and HIV; Sexuality and sex positive approaches; Well-being, quality of life and mental health; Substance use and harm reduction; Blind spots in the HIV response) including, but not limited to, the following types:

  1. Posters, presentations and discussions
  2. Demonstrations of innovative advocacy or equity initiatives
  3. Display of art projects
  4. Presentations of new research findings and evidence
  5. Interactive skills-building sessions and workshops
  6. Film screenings and digital storytelling
  7. Stories from community representatives
  8. Presentation of policy papers and community resources
  9. Roundtable discussions with key stakeholders in the field of HIV, viral hepatitis, and STIs
  10. Facilitated networking events

Interview with Laoise Darragh | The Mental Health Challenges Faced by Harm Reduction Staff

In 2023, C-EHRN dedicated a segment of its Civil Society Monitoring of Harm Reduction in Europe report to the mental health of harm reduction workers for the first time, an area of pressing importance that has barely been discussed in relevant literature so far. To accompany the publication The Mental Health Challenges Faced by Harm Reduction Staff, we bring an interview with the primary author, Laoise Darragh below.

Why did you decide to dedicate a chapter of the 2023 monitoring report to the mental health of harm reduction staff?

There were a number of factors. During the development of the monitoring report last year, the mental health of staff was something that kept coming up on a more informal basis, as well as that there was a lot more attention given to the mental health of frontline workers after the COVID-19 pandemic. It took quite a toll on frontline workers, but there was nothing at all on harm reduction staff as a particular group that might need specific support or may face specific challenges. When we conducted a literature review, there was almost nothing. I think that was the main driver. 

There was also a need for more qualitative research within the monitoring. That was something that focal points felt was quite important. I think this was the perfect topic to dive into in a more qualitative sense as well. It also gives the opportunity to advocate more for staff, because they’re kind of overlooked when the focus is mainly on clients.

What do you think the most pressing issues were regarding the mental health of harm reduction staff? What are the main challenges they face?

It’s a complicated web of challenges, but I would say that the most pressing factor would be the lack of political support in most of the cities. There’s a lot of stigmatization as well coming from local societies and from other services that are used by people who use drugs. This trickles down and instigates or influences all of the other challenges that staff face. The job itself can often be quite difficult, but it’s exacerbated by these unsupportive political environments, and that can cause difficulties in the relationships between services, between staff members and between staff and clients. I would say that that’s probably the most pressing issue.

Harm reduction staff should be able to have pride in their work. I think that can be very challenging for staff in a lot of cities given the stigmatization towards both clients and staff. Trying to combat that stigmatization, the organisation pushes that they are fighting against it as well, I think that was something that came up when we launched the report in the panel discussion. It’s nice for the workers to be able to feel that the organization is also fighting against that. It acknowledges the difficulties that press down on staff too.

What are the areas where the support is mostly missing or where change would be most urgently needed? 

The political environment and in particular the lack of funding is probably the biggest change that we need to see. Organizations struggle with resources and being able to support their staff because all of the funding has to go on clients. Even for organizations that do have maybe more funding than others, there are usually specifications for the funding – that it can’t be spent on, for example, team-building exercises. It’s often not just the funding itself, but all of the specifications of the funding that can be quite challenging.  I think that having more political support would trickle down into all of the other areas and alleviate some of those challenges as well. 

Have you noticed any significant differences among the focal points from the different cities and if so, would you describe what these were?

Cities with more progressive policies and support from local communities were able to implement more support in terms of mental health for staff. It was interesting that the focal point from Switzerland, for example, was quite shocked by the lack of mental health support in some of the Eastern European countries, because they’ve had it for 20-plus years. It’s mandatory to have counselling opportunities for their staff, which is very different to what’s being experienced in Eastern European countries, where a lot of the time there’s none.

I think it was interesting that there were also quite a lot of similarities. All of the focal points mentioned that this is a really important topic and something that hasn’t been addressed in the past. It was interesting that no matter what the political situation was, there was a feeling that this was a really important topic to focus on going forward. 

Despite the difficulties and barriers, including the lack of financial support, are there any best practices for organisational support that you would highlight?

We have a number of recommendations at the end of the report, some of which do depend on funding, but several which don’t, so that organizations can implement them no matter what their political situation or funding situation is. For example, trying to create a culture where there’s an openness to speak about mental health issues is really important. Having a mental health strategy is another one.

We have a member of staff working on more concrete guidelines for organizations which will come out at the end of the year and will highlight more specific things that organizations can bring in to support the mental health of their staff members no matter what their situation is. That’s quite exciting and I think it’ll be nice to have something more concrete in that sense as well. 

Would you pick a quote from the report and explain why you find it relevant?  

It’s very difficult to pick one. I have a couple here because it was quite a broad report and a number of different challenges and coping mechanisms came up.

One that highlights the importance of the issue is a quote from our focal point in Budapest:

“Everybody told [me] that yes, this is a very important issue now and especially in countries where resources are scarce and that organisations are stretched and all [of] these problems we have and so, I think it is a very relevant issue to focus on for the whole network.” (FP Budapest, p. 11.)

Another one is that

“It’s in the hands of politics. Because harm reduction workers are everywhere in every country, but depending on the political situation, their working situation changes accordingly. If the political situation is against harm reduction, it makes the work more difficult.” (FP Bern, p. 12.)

And a third highlight:

“The harm reduction worker, he really believes that this matters and harm reduction is the right way to go in this politics of prohibition and criminalisation. And workers build relationships with people who are extremely marginalised in society and have a lot of stigma and prejudice against them. And these relationships are important for both people, both the clients and the workers.” (FP P Reykjavik, p. 26.)

What emerged from the report was the importance of building relationships, a number of different relationships between staff and clients, between staff members themselves, between staff and other services, and also political relationships. Developing professional networks on the local, national or international level is really important because it prevents workers from feeling isolated. It protects them against the stigmatization that they feel from other areas of society or politics. The last quote highlights that building relationships is important for not only the clients but also for the harm reduction staff. 

How do you think that harm reduction organizations can use the report?

Apart from the recommendations and hopefully the guidelines that are going to be developed, I would hope that organizations can use the report as a tool to advocate for the importance of addressing the mental health of their staff. That they can share it with local or national policymakers, people who are involved in funding, other relevant stakeholders, or even colleagues working in other services, to highlight the need for increased support, less stigmatization and further resources for harm reduction staff and how that affects both staff and clients.

The report highlights that a holistic approach is needed to be able to help the situation, raising awareness of the topic of harm reduction. The harm reduction community in general is quite important too, as like I said, it’s something that people felt wasn’t spoken about before. Hopefully, they can use it for advocacy.

Then the guidelines, in a more practical sense. They’ll be able to pick out things at other organisations that maybe they hadn’t thought about in the past, best practices, from the report too, and implement them in their organization.

 

Following a new format, Correlation – European Harm Reduction Network’s Civil Society-led Monitoring of Harm Reduction in Europe 2023 Data Report is launched in 6 volumes: Hepatitis C Care, Essential Harm Reduction Services, New Drug Trends, Mental Health of Harm Reduction Staff, TEDI Reports and City Reports (Warsaw, Bălţi, Esch-sur-Alzette, London, Amsterdam). The Executive Summary can be accessed here.

C-EHRN Activity Report 2023 – Summary of Activities and Impact

C-EHRN is proud and grateful to present its 2023 Network Report, providing a summarised version of the activities undertaken last year. In this document, we are looking back at a year full of tasks, challenges and opportunities.

EFUS Security, Democracy and Cities Conference

On the 20th and 21st March, our Policy and Project Support Officer, Arianna Rogialli, attended the EFUS Security, Democracy and Cities Conference in Bruxelles and took part in the panel discussion on Drugs and Harm Reduction moderated by Laurent Maisse, Deputy Director of Transit ASBL and together with Nadia Zourgui, Deputy Mayor of Strasbourg and José Martinez Espasa, Chief Commissioner of the Gandia Local Police.

The session focused mainly on the challenges that cities face when providing support to people who use drugs, people who are experiencing mental health challenges or other marginalised populations while coordinating different social support services and communicating to the public about them.

During the session, C-EHRN emphasised its dedication to organising collaborative initiatives with city-level actors in the harm reduction field, including mayors, policymakers, and civil society. We also highlighted the urgent need to eliminate barriers to accessing mental health support services and to support and fund low-threshold services that can better reach and assist people who use drugs and are experiencing mental health challenges. Furthermore, we drew attention to the importance of funding harm reduction services. We also shared best practices for effective communication about harm reduction and neighbourhood cooperation between harm reduction services, residents, and business owners.

During the second day of the conference, we had the opportunity to visit the drug consumption room Gate, which is a member of the European Network of Drug Consumption Rooms [ENDCR], and the day and accommodation centre operated by Transit ASBL. Alongside the drug consumption room, Gate offers weekly drug-checking services, opportunities for testing for communicable diseases and community activities.

 

Executive Summary | Civil Society-led Monitoring of Harm Reduction in Europe 2023

Following a new format, Correlation – European Harm Reduction Network’s Civil Society-led Monitoring of Harm Reduction in Europe 2023 Data Report is launched in 6 volumes: Hepatitis C Care, Essential Harm Reduction Services, New Drug Trends, Mental Health of Harm Reduction Staff, TEDI Reports and City Reports (Warsaw, Bălţi, Esch-sur-Alzette, London, Amsterdam). 

The Mental Health Challenges Faced by Harm Reduction Staff

The publication is a segment of Correlation – European Harm Reduction Network (C-EHRN)’s Civil Society-led Monitoring of Harm Reduction In Europe 2023 Data Report and is dedicated to the well-being and working environment of harm reduction staff. The study focuses on the various challenges harm reduction workers encounter in their work and how those challenges affect them and their organisations, as well as coping mechanisms and organisational opportunities for support.

The participants in this study are identified as focal points within the C-EHRN. The network encompasses a diverse array of contributors, including grassroots and community-based organisations, service providers, drug user organisations, and research entities. Within this network, focal points act as hubs for collecting data and information on a broad range of issues related to harm reduction in the cities they work.

 

Watch the recording of the report launch webinar where 3 representatives of the participating focal points, Magdalena Bartnik (Prekursor Foundation for Social Policy, Warsaw, PL), Martin Blakebrough (Kaleidoscope 68 Project, Newport, GB) and Tessa Windelinckx (Free Clinic, Antwerp, BE), joined the primary author, Laoise Darragh, to discuss the findings:

 

Following a new format, Correlation – European Harm Reduction Network’s Civil Society-led Monitoring of Harm Reduction in Europe 2023 Data Report is launched in 6 volumes: Hepatitis C Care, Essential Harm Reduction Services, New Drug Trends, Mental Health of Harm Reduction Staff, TEDI Reports and City Reports (Warsaw, Bălţi, Esch-sur-Alzette, London, Amsterdam). The Executive Summary can be accessed here.

Report Launch | The Mental Health Challenges Faced by Harm Reduction Staff

To mark the publication of The Mental Health Challenges Faced by Harm Reduction Staff, we invite you to join the webinar on the 15th of February!

The publication is a segment of Correlation – European Harm Reduction Network (C-EHRN)’s Civil Society-led Monitoring of Harm Reduction In Europe 2023 Data Report and is dedicated to the well-being and working environment of harm reduction staff. The study focuses on the various challenges harm reduction workers encounter in their work and how those challenges affect them and their organisations, as well as coping mechanisms and organisational opportunities for support.

The participants in this study are identified as focal points within the C-EHRN. The network encompasses a diverse array of contributors, including grassroots and community-based organisations, service providers, drug user organisations, and research entities. Within this network, focal points act as hubs for collecting data and information on a broad range of issues related to harm reduction in the cities they work.

During the webinar, 3 representatives of the participating focal points will join the primary author, Laoise Darragh, to discuss the findings.

Panellists:
Laoise Darragh (C-EHRN)
Magdalena Bartnik (Prekursor Foundation for Social Policy, Warsaw, PL)
Martin Blakebrough (Kaleidoscope 68 Project, Newport, GB)
Tessa Windelinckx (Free Clinic, Antwerp, BE)

To join the webinar, register by the 14th of February on this link.

 

 

Following a new format, Correlation – European Harm Reduction Network’s Civil Society-led Monitoring of Harm Reduction in Europe 2023 Data Report is launched in 6 volumes: Hepatitis C Care, Essential Harm Reduction Services, New Drug Trends, Mental Health of Harm Reduction Staff, TEDI Reports and City Reports (Warsaw, Bălţi, Esch-sur-Alzette, London, Amsterdam). The Executive Summary can be accessed here.

SEMID-EU: Migration and access to (Harm Reduction) Services

Several risk factors expose migrants in Europe to high-risk drug use. These include traumatic experiences, disengagement with society, unemployment and poverty. Services and municipalities throughout the European Union are faced with the urgent challenge to address these migrants’ needs.

A better understanding of the needs of vulnerable migrants who use drugs could improve local responses throughout Europe. In the SEMID-EU project, coordinated by Mainline, seven partners across Europe worked to improve the (harm reduction) services access for migrants. This project focuses on filling knowledge and practice gaps in drug use and migration in Europe, aiming to improve the wellbeing of vulnerable migrants who use drugs by improving knowledge and understanding among policymakers and practitioners and strengthening capacities of healthcare and support services working with these groups.

C-EHRN created several resources for this project, including a Policy Brief and several Fact Sheets, which you can download below.
Find out more about the other activities and results of the project here.

Expert & Member Meeting 2023

In December, Budapest gave place to C-EHRN’s Expert & Member Meeting, with more than 130 professionals gathering to discuss the key activities of the network!

To find out more about the event and C-EHRN’s key activities, watch the inspiring video by the Rights Reporter Foundation, and look at the summary of the event below.

On Monday the 4th, our focal points discussed the civil society monitoring of harm reduction in Europe process, ways to use the C-EHRN Monitoring data for advocacy purposes and getting familiar with a new data collection and visualisation tool for the C-EHRN monitoring activities. In the meantime, the partners of the Drug-Prep Project had insightful discussions on foresight research and other project activities.

 

A press conference also took place, introducing drug consumption rooms, drug checking in Europe and the example of Portugal’s health-based drug policy approach, sharing the message that “not only the richest countries in the world can implement efficient drug policies based on decriminalisation” (Marta Pinto, University of Porto). As a result, the conference gained coverage in RTL, one of Hungary’s most popular commercial TVs.

At the end of the day, some meeting participants visited Válaszút Misszió Drogkonzultációs Iroda, learning about their services and the Hungarian context.

Tuesday began with C-EHRN’s director, Katrin Schiffer, opening the official programme for all participants of the event, also introducing C-EHRN’s new visual identity which we launched with the event! During the plenary sessions, we discussed various topics including drug policy and harm reduction in Hungary, civil society monitoring and data collection, and some of the network’s main activities, including research on harm reduction in prison and harm reduction and gender.

Throughout the afternoon’s parallel sessions, we also talked about infectious diseases in community-based settings in the context of the BOOST project, while a migration workshop took place through the SEMID-EU project, and those interested could find out about the application of foresight research in the context of the drugs field (Drug-Prep project). In the following sessions, the civil society involvement case studies conducted in 4 European countries were discussed, while we also spoke about drug consumption rooms and mental health.

Wednesday’s parallel sessions gave space for an engaging conversation about C-EHRN’s strategy for 2024-2028, while drug checking and the state of harm reduction in five European cities (Amsterdam, Bălţi, London, Esch-sur-Alzette and Warsaw) were also discussed.

The Semid-EU plenary delved into the needs and (harm reduction) service access of marginalised migrants who use drugs in the EU, after which we reflected on the outcomes of the time spent together at the member & expert meeting.

To capture the event, we bring you a collection of images below.

Insights from HepHIV2023 Conference: Addressing Stigma, Testing, and Integration in HIV and Hepatitis Services

The HepHIV2023 conference, held in Madrid, Spain, from 13th to 15th November, convened a diverse array of stakeholders committed to advancing the fight against HIV, viral hepatitis and sexually transmitted infections (STIs). The event was organized by EuroTEST, and our Senior Policy Officer, Roberto Pérez Gayo, also participated in its organising committee. The conference spotlighted pivotal themes in the realm of infectious diseases, with a focus on integrated testing, technological advancements, and equitable service delivery.

Rafaela Rigoni, C-EHRN’s Scientific Officer, offers key takeaways from the conference, emphasizing critical issues surrounding HIV, and highlighting the conference’s focus on testing, migration, and stigma.

Stigma emerged as a central point of discussion, drawing attention to the multifaceted dimensions impacting individuals living with HIV (PLHIV) and at-risk communities. The targets for 2025 established by UNAIDS to ensure that less than 10% of these groups would be subjected to stigma and discrimination spurred collaborative efforts to develop monitoring mechanisms. Notably, the collaboration between the European Centre for Disease Prevention and Control (ECDC), European AIDS Treatment Group (EATG) and AIDS Action Europe led to the creation of an instrument based on the HIV Stigma Index to measure stigma.

Insights in a recently published report using the HIV stigma survey showed that despite participants generally rating their overall quality of life as satisfactory, there is a prevalent connection between stigma and depression. This critical correlation between stigma and mental health, particularly depression, emphasises the need for enhanced mental health services tailored to the unique needs of the population living with HIV.

Moreover, the survey shed light on the alarming prevalence of self-stigma, indicating that individuals harboured negative perceptions about themselves, along with instances of stigma from family and friends. Notably, healthcare settings emerged as hotspots for heightened stigma. Those reporting lower life quality consistently reported more profound experiences of stigma, highlighting the pressing need for targeted interventions to address and mitigate these challenges. The need to understand the experiences of different key populations and research the intersectionality around stigma was highlighted.

The conference didn’t solely focus on HIV; the first attempts to develop a monitoring instrument to measure HCV-related stigma are also underway by ECDC, and C-EHRN was invited to be part of an expert group with an advisory role, fulfilled by our Senior Scientific Officer.

 

More about HepHIV

The conference brings together stakeholders from all levels of the health system, from community organisations to health care providers and policymakers to present and discuss new approaches for testing and linkage to care for HIV, viral hepatitis, sexually transmitted infections (STIs) and tuberculosis (TB), highlighting programmatic/ implementation issues and adaptation of testing services in response to emerging public health issues.  Frontline workers constituted the majority of participants, highlighting the practical implications of the discussions for those directly involved in service delivery.

In summary, the conference illuminated the complexities surrounding stigma, emphasized the critical intersections between mental health and stigma, and underscored the importance of tailored interventions. Moreover, it highlighted the imperative need for integrated testing approaches and the adaptation of services to address emerging public health challenges.