Insights from HepHIV2023 Conference: Addressing Stigma, Testing, and Integration in HIV and Hepatitis Services

The HepHIV2023 conference, held in Madrid, Spain, from 13th to 15th November, convened a diverse array of stakeholders committed to advancing the fight against HIV, viral hepatitis and sexually transmitted infections (STIs). The event was organized by EuroTEST, and our Senior Policy Officer, Roberto Pérez Gayo, also participated in its organising committee. The conference spotlighted pivotal themes in the realm of infectious diseases, with a focus on integrated testing, technological advancements, and equitable service delivery.

Rafaela Rigoni, C-EHRN’s Scientific Officer, offers key takeaways from the conference, emphasizing critical issues surrounding HIV, and highlighting the conference’s focus on testing, migration, and stigma.

Stigma emerged as a central point of discussion, drawing attention to the multifaceted dimensions impacting individuals living with HIV (PLHIV) and at-risk communities. The targets for 2025 established by UNAIDS to ensure that less than 10% of these groups would be subjected to stigma and discrimination spurred collaborative efforts to develop monitoring mechanisms. Notably, the collaboration between the European Centre for Disease Prevention and Control (ECDC), European AIDS Treatment Group (EATG) and AIDS Action Europe led to the creation of an instrument based on the HIV Stigma Index to measure stigma.

Insights in a recently published report using the HIV stigma survey showed that despite participants generally rating their overall quality of life as satisfactory, there is a prevalent connection between stigma and depression. This critical correlation between stigma and mental health, particularly depression, emphasises the need for enhanced mental health services tailored to the unique needs of the population living with HIV.

Moreover, the survey shed light on the alarming prevalence of self-stigma, indicating that individuals harboured negative perceptions about themselves, along with instances of stigma from family and friends. Notably, healthcare settings emerged as hotspots for heightened stigma. Those reporting lower life quality consistently reported more profound experiences of stigma, highlighting the pressing need for targeted interventions to address and mitigate these challenges. The need to understand the experiences of different key populations and research the intersectionality around stigma was highlighted.

The conference didn’t solely focus on HIV; the first attempts to develop a monitoring instrument to measure HCV-related stigma are also underway by ECDC, and C-EHRN was invited to be part of an expert group with an advisory role, fulfilled by our Senior Scientific Officer.

 

More about HepHIV

The conference brings together stakeholders from all levels of the health system, from community organisations to health care providers and policymakers to present and discuss new approaches for testing and linkage to care for HIV, viral hepatitis, sexually transmitted infections (STIs) and tuberculosis (TB), highlighting programmatic/ implementation issues and adaptation of testing services in response to emerging public health issues.  Frontline workers constituted the majority of participants, highlighting the practical implications of the discussions for those directly involved in service delivery.

In summary, the conference illuminated the complexities surrounding stigma, emphasized the critical intersections between mental health and stigma, and underscored the importance of tailored interventions. Moreover, it highlighted the imperative need for integrated testing approaches and the adaptation of services to address emerging public health challenges. 

Assessing the Impact: European Testing Week’s Influence on HIV and Hepatitis Testing Coverage

The article “The use and impact of European Testing Week regional awareness campaigns to increase HIV and viral hepatitis testing coverage” has recently been published in the journal HIV Medicine. Based on insights from the special survey among previous European Testing Week participants, it assesses the impact of the campaign.

The article has been submitted on behalf of the European Testing Week Working Group, of which Correlation – European Harm Reduction Network is also part.

European Testing Week 2023 Autumn

The Autumn European Testing Week takes place on 20-27 November 2023.

Join the partner organisations – community, healthcare and policy institutions – in increasing access to testing and promoting awareness on the benefits of earlier hepatitis and HIV testing!

Take a look at the new website that will serve as a resource center for BOOST project outcomes

The new website of BOOST, a project supporting community-based & community-led organisations in providing communicable diseases services, is now available online!

BOOST enhances the implementation of harm reduction interventions by supporting community-based and community-led services that work to counteract the prevalence of communicable diseases including HIV/AIDS and viral hepatitis.

Those interested can read about BOOST, its aims and activities on the new web platform. In later project phases, the resources produced throughout the project activities will also be published here, including an up-to-date overview of the quality of testing and linkage to care services offered by harm reduction organisations in the EU and selected neighbouring countries, good practice examples, webinars and training materials.

Co-funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union. Neither the European Union nor the granting authority can be held responsible for them.

BOOST at the HaDEA’s meeting: “Best practices in community-based services for HIV”

The European Health and Digital Executive Agency (HaDEA) brought together 5 exciting projects under the #EU4Health Programme at an online meeting on the 28th of June. The following projects were represented at the meeting:
All 5 projects have received the Action Grant to enhance community-based services for HIV, AIDS, Viral Hepatitis & Tuberculosis. At the meeting, HaDEA aimed to foster collaboration and identify synergies among the projects.
We were proud to be present as the coordinators of the BOOST project and partners in the CORE project!

 

BOOST Project at the Central and Eastern European Summit 2023

The Central and Eastern European Summit 2023 on Hepatitis C, HIV and other infections – screening, linkage to care and treatment took place in Prague on the 15-16th of June and gathered over 200 participants from Czechia and Central and Eastern Europe. The aim was to facilitate knowledge exchange, share good practices and improve care for hard-to-reach communities, particularly people who use drugs.

 
Some elements of the BOOST project were also presented by Tessa Windelink (Free Clinic) and Jukka Koskelo (A-klinikka Foundation), representatives of project lighthouses, with the title “Community management plan – how to improve continuum of care at the local level? Project BOOST” as part of the Local Strategies session. On the second day, a Boost project meeting for members of the project team and interested partners also took place, bringing more clarity regarding cooperation and organisation among the partners.
 
The main aim of the BOOST project is to enhance the implementation of high-quality community-based & community-led communicable disease services as part of a comprehensive, people-centred and integrated harm reduction approach. The project is funded by the EU4Health programme of the European Union.
 
 
Read more about the BOOST project here.

 

Webinar Report – Civil Society Forum on HIV/AIDS, Hep & TB

 

The report from the webinar ‘Standards of CARE: HIV, VH, and TB – Good Practices and Ensuring Prevention & Care for People on the move’ is now available.

 

Since its creation in 2005, the EU Civil Society Forum on HIV/AIDS (hereafter CSF) and since 2017,
the EU CSF on HIV/AIDS, TB and viral hepatitis has been instrumental in providing and sharing critical
information and evidence, in undertaking joint actions, and creating synergies between its members.

 

The report contains current standards of care, challenges in implementation, good practice examples of implementation, and cross-border healthcare.

 

Read the full report here.

Data Report Launch Recording

Online launch of the 2022 Civil Society Monitoring of Harm Reduction in Europe.

 

C-EHRN hosted an online launch and discussion of the 2022 Monitoring Report on the 23rd February. During this webinar, key findings and results in Essential Harm Reduction Services, Hepatitis C and Drug Use, and New Drug Trends in Europe were discussed. Implications and opportunities for civil society advocacy, service provision and policy development were also addressed.

 

Speakers;

Katrin Schiffer (CEHRN), Rafaela Rigoni (CEHRN), Iga Jeziorska (CEHRN), Daan van der Gouwe (Trimbos-Instituut), Tuukka Tammi (THL), Perrine Roux (Inserm), Mat Southwell (EuroNPUD) and Alexei Lahov (Humanitarian Action).

 

Watch the full recording here.

 

Monitoring Executive Summaries 2022

Correlation – European Harm Reduction Network, together with its Focal Points, presents the Executive Summary of its Data Report 2022 in ten languages to support increasing the impact and reach of our work on the local and national levels. The executive summaries are available in English, Spanish, French, Portuguese, Russian, German, Italian, Polish, Czech and Greek. Download the executive summaries below.

Monitoring Data Report 2022

2022 was one of the most consequential in recent European history, witness to a series of overlapping crises: the aftermath of the COVID-19 pandemic, Russia’s invasion of Ukraine, fast-growing population displacements, the MPOX outbreak, shrinking civil society spaces and the deepening of socioeconomic inequalities, among others.

Within this context, C-EHRN’s monitoring activities have been embedded with increased urgency. Whilst the effects of these developments have been felt in nearly everyone’s life, people who use drugs, as well as other marginalised and underserved communities, have particularly and disproportionately experienced its negative consequences. Equally, harm reduction organizations in Europe have been put to the test.

In combination with advocacy, the application of civil society-led monitoring tools is crucial to hold governments accountable and to improve the care and support that people who use drugs receive and their environments.

Together with more than one hundred organizations and individuals from thirty-four European countries, C-EHRN set up for itself the task to provide an in-depth look at Harm Reduction in Europe. To this end, the annual 2022 Data Report focused on three main themes: harm reduction essential services, Hepatitis C, and new drug trends. In addition to the data collected, this year C-EHRN conducted in-depth interviews with all its Focal Points, allowing for a richer picture of the developments from last year.

Read the Data Report 2022