News HCV

Fill in the European Region Survey to Explore the Experiences of Living with Hepatitis B and/or Hepatitis C

Multiple authors

European Centre for Disease Prevention and Control | ECDC
World Hepatitis Alliance | WHA
Europe
13.02.2024

Have you experienced stigma or discrimination around hepatitis B or C? Make your voice heard by taking part in the world’s first survey about it! The survey is a pilot and is currently open for people from Bulgaria, Croatia, Denmark, Germany, Romania and Spain. It can be filled in the following languages:

 

The World Hepatitis Alliance (WHA), in collaboration with the European Centre for Disease Prevention and Control (ECDC), is working to understand the experience of stigma and discrimination* of people living with hepatitis B and C in the European region**. This survey is the first survey of stigma and discrimination related to hepatitis to be conducted in the region. We hope the information collected through this survey will help policy makers formulate informed policies and strategies to reduce stigma and discrimination among people living with hepatitis and improve the quality of life for people with hepatitis. The results of the survey will also enable the monitoring of trends over time, help identify targeted interventions to tackle stigma and discrimination, and explore the complex dynamics related to viral hepatitis stigma.

If you are 18 years of age or older and living with hepatitis B and/or hepatitis C, or have ever had hepatitis C, then you can help out by answering this survey. The survey should take around 10 minutes to complete. Please note that the survey is anonymous, confidential, and no information will be collected that allows for the identification of participants. All data collected as part of the survey will be handled in strict accordance with the General Data Protection Regulation (GDPR) guidelines.
We are aware that some of the questions are sensitive. Please do not answer any question that you feel uncomfortable with. If you would like further support, please click the link at the end of the survey to find a list of local organisations working with people who have hepatitis B and hepatitis C that you can contact.

*Please check the WHA’s report on stigma and discrimination if you want to learn more about it.
**Countries within the European Region: Albania, Andorra, Armenia, Austria, Azerbaijan, Belarus, Belgium, Bosnia and Herzegovina, Bulgaria, Croatia, Cyprus, Czechia, Denmark, Estonia, Finland, France, Georgia, Germany, Greece, Hungary, Iceland, Ireland, Israel, Italy, Kazakhstan, Kyrgyzstan, Latvia, Liechtenstein, Lithuania, Luxembourg, Malta, Moldova, Monaco, Montenegro, Netherlands, North Macedonia, Norway, Poland, Portugal, Romania, Russia, San Marino, Serbia, Slovakia, Slovenia, Spain, Sweden, Switzerland, Tajikistan, Turkey, Turkmenistan, Ukraine, United Kingdom, Uzbekistan, and Vatican City.

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